Lipoedema

Symptoms of lipoedema

In lipoedema, the thighs, buttocks, lower legs and sometimes the arms, become bigger due to a build-up of abnormal fat cells. 

Both legs and/ or the arms are usually bigger at the same time and to the same extent.

The feet and hands aren't affected. This leads to a "bracelet" effect or "band-like" appearance just above the ankles and wrists.

Leg and arm size can vary between people with lipoedema.

The condition can gradually get worse over time.

As well as becoming larger, affected areas of the body may:

• feel soft, "doughy" and cold 
• bruise easily
• ache or feel painful or tender
• have small broken veins under the skin

Someone with lipoedema may eventually get build-up of fluid, (lymphoedema) in their legs. 

This type of swelling can worsen by the end of the day and may improve overnight, while the fatty swelling of lipoedema is constant.

The combination of these symptoms can lead to reduced mobility and psychological issues, such as low self-esteem.

When to see your GP

See your GP if you have symptoms of lipoedema. They'll ask you about your symptoms and examine the affected areas of your body.

If your GP thinks you have lipoedema, they may refer you to hospital, for specially trained staff to give you advice about how to manage the condition.

Treatments for lipoedema

There's been little research into lipoedema, so there's some uncertainty about the best way to treat the condition.

If you have lipoedema, it's important to avoid putting on a lot of weight, because  obesity will make the fatty swelling worse.

Compression tights are helpful for some people, because they support the fatty swelling and may reduce the pain.

The only treatment that appears to help in reducing the build-up of fatty tissue, linked with lipoedema, is a procedure called tumescent liposuction.

Tumescent liposuction

Tumescent liposuction involves sucking out the unwanted fat through a tube. A liquid solution is first injected into the legs to help numb the area and reduce blood loss.

The procedure can have good results. But several operations may be needed to remove the fat from different parts of your body.

Fatty swelling of the legs may return after having the procedure if you gain weight.

Non-surgical treatments may also be needed for a long period after having tumescent liposuction. For example, you'll need to wear compression garments after surgery to prevent complications, such as lymphoedema.

It's difficult to get liposuction, on the health service, to treat lipoedema. Your GP can advise you if this is possible.

Treatments to prevent lymphoedema

Non-surgical treatments can sometimes help improve pain and tenderness, prevent or reduce lymphoedema and improve the shape of affected limbs. Although the treatments often have little effect on the fatty tissue.

Several different treatments can help to improve the flow and drainage of fluid in your tissues, such as:

• compression therapy – wearing bandages or garments that squeeze the affected limbs
• exercise – usually low-impact exercises, such as swimming and cycling 
• massage – techniques that help encourage the flow of fluid through your body

Treatments that don't work

Treatments used for some types of tissue swelling are generally unhelpful for lipoedema.

Lipoedema doesn't respond to:

• raising the legs
• diuretics (tablets to get rid of excess fluid)
• dieting – this tends to result in a loss of fat from areas not affected by lipoedema, with little effect on the affected areas

Causes of lipoedema

The cause of lipoedema isn't known, but in some cases there's a family history of the condition. It seems likely that the genes you inherit from your parents play a role.

Lipoedema tends to start at puberty or at other times of hormonal change, such during pregnancy or the menopause. This suggests hormones may also have an influence.

Although the build-up of fat cells is often worse in obese people, lipoedema isn't caused by obesity and can affect people who are a healthy weight.

It shouldn't be mistaken for obesity and dieting often makes little difference to the condition.

Lipoedema or lymphoedema

Lipoedema and lymphoedema can look much the same, but there are important differences.

Lymphoedema is swelling under the skin caused by a build-up of fluid in the lymphatic system – the network of vessels that drains excess fluid from body tissue.

Swollen skin caused by lymphoedema will pit or indent if you press it, but this doesn't happen in cases of lipoedema.

A person with lipoedema may eventually develop lymphoedema as well, if the build-up of fat affects lymphatic drainage. This combination of the two conditions is known as lipo-lymphoedema.

More useful links

• How to use your health services