Dystonia
Dystonia is the name for uncontrolled and sometimes painful muscle movements (spasms). It's usually a lifelong problem, but treatment can help relieve the symptoms. See your GP if you think you might have dystonia. Dystonia is uncommon, but it's best to get the symptoms checked out, (see symptoms section below).
Symptoms of dystonia
Dystonia can affect your whole body or just one part. It can start at any age.
Symptoms of dystonia include:
- uncontrolled muscle cramps and spasms
- parts of your body twisting into unusual positions – such as your neck being twisted to the side or your feet turning inwards
- shaking (tremors)
- uncontrolled blinking
The symptoms may be continuous or come and go. They may be triggered by things like stress or certain activities.
Dystonia symptoms can be triggered by:
- tiredness
- stress
- drinking alcohol or caffeine
- talking
- eating or chewing
- activities like writing, typing or playing an instrument
When to see your GP
You should see your GP if you think you might have dystonia.
Dystonia is uncommon, but it's best to get the symptoms checked out.
If your GP thinks you could have dystonia, they may refer you to a specialist called a neurologist for tests.
How dystonia is diagnosed
To diagnose dystonia, a neurologist may:
- ask about your symptoms
- ask about any other conditions you have and if anyone else in your family has dystonia (sometimes it can be inherited)
- carry out some blood and urine tests
- arrange a brain scan to look for any problems
If you're diagnosed with dystonia, your neurologist can tell you which type you have and what your treatment options are.
Types of dystonia
Below are the main types of dystonia and the area of the body that is affected.
- generalised dystonia – affects most of the body
- myocolonus dystonia - affects arms, neck and torso
- cervical dystonia (torticollis) – affects neck only
- blepharospasm – affects eyes
- laryngeal dystonia – affects voice box (larynx)
- task-specific dystonia (writer's cramp) – affects arms and wrists
- oromandibular dystonia – affects lower face, tongue or jaw
The Dystonia Society has more on the different types of dystonia.
Treatments for dystonia
Treatment can help relieve the symptoms of dystonia. The best option for you depends on the type of dystonia you have. The health professional looking after your care will discuss treatment options with you.
The main treatments for dystonia include:
- medication (both injections and tablets)
- a type of surgery called deep brain stimulation
Physiotherapy and occupational therapy may also help.
Surgery for dystonia
Deep brain stimulation is the main type of surgery for dystonia. It may be offered on the health service if other treatments don't help.
It involves inserting a small device, similar to a pacemaker, under the skin of your chest or tummy.
The device sends electrical signals along wires that are placed in the part of the brain that controls movement.
Living with dystonia
Dystonia affects people in different ways. The severity of symptoms can vary from one day to another.
It can have a big effect on your life and make daily activities painful and difficult.
It's usually a lifelong condition. It may get worse for a few years but then stay steady. Occasionally, it can improve over time.
Causes of dystonia
Dystonia is thought to be due to a problem with the part of the brain that controls movement.
Often the cause is unknown.
Sometimes it can be due to:
- an inherited genetic problem
- Parkinson's disease
- a stroke
- cerebral palsy
- multiple sclerosis
More useful links
The information on this page has been adapted from original content from the NHS website.
For further information see terms and conditions.