Dementia support: understanding and responding to changing behaviour
Dementia is a progressive condition that, over time, can affect a person's behaviour. Find information about understanding and supporting a person living with a dementia who may be displaying changing behaviour.
Common signs of changing behaviour and dementia
As a dementia progresses, it can lead to a person feeling anxious, confused and frustrated.
A person living with a dementia may be less able to tell what they need or what they are feeling. So they will try to tell what they are feeling through their behaviour.
Common signs of changing behaviour include:
- repeating questions or carrying out an activity over and over again
- walking or pacing up and down
- sleep problems
- mood swings
- distress and shouting
- becoming suspicious of other people
Repetitive behaviour and dementia
People with a dementia often repeat questions or carry out certain actions over and over again. This may be due to:
- memory loss
- boredom
- anxiety
- side effects of medication
Some tips that you may find helpful if someone, you are caring for, is repeating certain behaviour are below.
Although it can be difficult, try to be patient with the person. They may not realise they are repeating themselves and being patient can help them feel secure and supported.
Try to spot a link between different repetitive behaviours, for example, if they are repeatedly trying to remove their clothes, they may be too warm or may need to use the bathroom.
If the person is asking repeatedly what day or time it is, perhaps getting a large calendar or clock that they can easily see might help.
If you think they're bored, try engaging them in an activity they enjoy, such as listening to music.
Walking or pacing
It’s very common for people at certain stages of dementia to pace up and down or leave their home for long walks.
The reasons why someone with a dementia walks or paces may not be obvious.
Reasons may include:
- intending to go to the shops or visit a friend and then simply forgetting where they’re going
- they may be bored or uncomfortable sitting at home and want to use up some energy
- they may simply be confused about what they should be doing and where they should be
- the feeling they have somewhere to be
Some tips you may find helpful if someone, you are caring for, is walking or pacing are below.
If you notice them leaving, you might want to accompany them to guide them and make sure they don’t end up being distressed.
Make sure they have some form of personal identification with them and are suitably dressed for the weather.
Speak to local shopkeepers and neighbours you trust to let them know about the person’s dementia and give them a contact number to call if they’re concerned about the person’s behaviour.
Use tracking devices and alarm systems (telecare). They won’t solve all your worries about someone with a dementia, but may give you some peace of mind.
Make sure they have plenty to do and is getting mental and physical stimulation during the day.
Sleep problems
People with a dementia often experience disturbed sleep.
They may wake up during the night or be restless.
These problems may get worse as the illness progresses.
People with a dementia may also have painful illnesses, such as arthritis, which cause or contribute to sleep problems.
Some medication can cause sleepiness during the day and interfere with sleep at night.
Sleeping pills can be used with care in people with a dementia (speak to their GP for advice). However, sleep hygiene measures are best.
These measures include:
- having no naps during the day
- keeping regular bedtimes
- avoiding alcohol or caffeine at night
Mood swings
People with a dementia can experience mood swings as they cope with the daily challenges of living with their condition.
This can lead to a person feeling sad or angry at times, or scared and frustrated as the disease progresses.
People with dementia may become suspicious of others
Dementia can make some people become very suspicious.
This can be due to:
- memory loss
- lack of recognition of familiar faces
- general confusion caused by the effects of the condition on the brain
The person you care for may accuse you or their friends and neighbours of taking their belongings.
If they lose items, they may panic and convince themselves that they have been burgled.
Their behaviour may seem delusional and paranoid. However, as their carer, try to remember the way they feel is very real.
Some tips that you may find helpful if someone, you are caring for, is becoming suspicious include:
- listening to their worries
- trying to change the subject, if you're sure their suspicions are unfounded
- not taking the false accusations personally
- trying not to argue with or correct them
- trying to find out if there is a reason behind their behaviour, for example, have they forgotten where they left something
Drug treatment for dementia-related behaviour
In extreme circumstances, for example, if the person’s behaviour is harmful to themselves or others and all methods of calming them have been tried, a doctor may prescribe medication.
If you want information about drugs to help manage behavioural symptoms of dementia, or if you’re concerned about the side effects of medication, speak to the person’s GP.
Encouraging someone with a dementia to communicate
Over time, dementia will affect a person's ability to remember and understand basic everyday facts, such as names, dates and places.
All behaviour is a form of communication.
A person living with a dementia may be less able to tell what they need or what they are feeling so they try to tell this through their behaviour.
By communicating well with a person living with a dementia, you can help increase their understanding and wellbeing.
Where to find help and support
If you have a dementia, you may feel sad or angry at times, or scared and frustrated as the disease progresses.
As a carer, seeing a loved one's behaviour change can also be difficult and distressing.
It is important to remember that you are not alone. Help and support are available. It can help to talk to someone about your worries.
This could be a family member or friend, a member of your local dementia support group or your GP, who can refer you to a counsellor in your area.
You can find further information on dementia and support services available at the link below: